Study about Cryopyrin-Associated Periodic Syndromes (CAPS)
Abstract: Few medical communication reports discuss the planning and execution of clinical publications that describe treatment options for rare or “orphan” diseases. While orphan-designated drugs follow the same development pathway as ther pharmaceutical products, key challenges are the limited resources and small patient pools available for research, thus often restricting the number of scientific studies and associated publications.
Physician-driven disease-state/ educational publications therefore increasingly become important in highlighting the unmet needs of 1such patient populations. This report describes publication activity in support of rilonacept, an orphan-designated drug for a rare disorder, Cryopyrin-Associated Periodic Syndromes (CAPS). Keep reading…





